Hugo’s Story

At only 36 hours old, little Hugo was admitted to Sydney Children’s Hospital, Randwick (SCH), where he was diagnosed with Hirschsprung’s Disease, a medical condition that affects the bowels causing chronic constipation.

Alyssa’s Story

When ten-month-old Alyssa developed rashes around her ankles, her mum Amanda rushed her to Sydney Children’s Hospital, Randwick, fearing she had meningitis. While this was ruled out, doctors told her devastated parents little Alyssa had infantile ALL – Acute Lymphoblastic Leukaemia.

Jayden’s Story

Jayden has a rare and incurable blood clotting disorder, Severe Haemophilia A. It means he is missing a clotting factor (Factor VIII) in his blood and for the rest of his life is prone to spontaneous bleeding, especially internally.

Ashleigh’s Story

I first experienced pain when exercising in the summer of 2010. I initially visited a podiatrist and physiotherapist which seemed to provide short term relief. My pain escalated rapidly in April 2012, so I decided to make an appointment with a new GP who organized a bone scan that showed a large mass.